TASS: TASS Russian News Agency: Expert says children’s palliative care practices need to be integrated into a single system
The creation of a single federal system uniting individual regional practices of palliative care for children will improve the level of care provided to patients and enable subjects to share experiences. This opinion was expressed by Maiia Rusakova, Director of the Sociological Clinic of Applied Research at St Petersburg University.
’It is necessary to create a unified system at the federal level, which would connect separate regional systems of providing palliative care. All regions are at a different level of development. Some are just forming, some have developed enough and can pass their experience to other regions,’ said Maiia Rusakova at the Civic Chamber of the Russian Federation while summarising the results of the project "Improving the quality of palliative care for children".
Maiia Rusakova also pointed out that in order to improve the quality of palliative care it is necessary to implement legal regulation.
The regions need a unified document that would regulate inter-agency cooperation in the provision of palliative care between medical organisations, social care institutions and educational institutions.
Maiia Rusakova, Director of the Sociological Clinic of Applied Research at St Petersburg University
Among problems present at the moment in palliative care, Maiia Rusakova highlighted the absence of a unified federal register, which could be used to monitor the distribution of funds, as well as the quality of service. ’Another problem is that we have different information in the registers in different regions, which makes it difficult to compare needs: what needs are sufficiently met and which are not in each particular region,’ she added.